This Little girl slipped my mind till just now, i was doing a google image search for TW and came across an old image for "luciannas walk" Please check the website out, Nicola came to see me months ago to tell me about a walk she was doing for a little girl with a serious illness.. i gave a small donation and forgot.. i will give more.
Feel free to donate on the site.http://www.lucianaswalk.com/
"In March 2010 I, Nicola Morris from Blackburn Lancashire, and my father Keith Morris from Blackpool, Lancashire, will both be walking the highest free standing mountain in the world. Mount Kilimanjaro, standing at breathtaking 19’340 ft (5895 meters).
By doing this we aim to raise as much money as possible to fund further research and raise awareness into a rare genetic condition known as Fibrodysplasia Ossificans Progressiva (FOP).
Luciana Wulkan is a young sufferer of FOP who also lives in Lancashire and is the reason behind our Walk.
Please explore the website by using the tabs above to find out more about Luciana, FOP and how you can help!"